Skip to content

A little cutie with a Long QT

Home
What is Long QT Syndrome
Cardiac Arrest vs Heart Attack
Contact

Contact

Name(required)

Email(required)

Comment(required)

Δ

Like this:

Like Loading...

The Long Cutie on Facebook

The Long Cutie on Facebook

Instagram

I took Isla for a walk today. I really am so grateful for my @4louis.charity bear and to able to still feel connected with her. Miss you lots Isla 💕🐻

Today I’m wearing Red. It’s National Wear Red Day, which in the UK is for raising awareness of CHD. Long QT Syndrome is tricky in that it isn’t really classed as CHD but for the sakes of today I’m telling you all about it.

I originally just did this as a story - my #onthisday but I love Isla’s smile on it too much and the message behind it.

So grateful to @thryvtrx for this kind donation to @sadsfoundation in Isla’s name ❤️ The speed at which Thryv are working is unprecedented in drug development. No corners or quarters cut, just solid flat out work to create a new effective therapy, the first engineered specifically for Long QT, and all because my little girl was so inspirational. She is still the driving force for the team and I am so proud of her ❤️ She’s going to save/improve the lives of so many people 🥰

I’m so proud of what Team Isla has achieved. She is making such a difference in this world. The energy you see in this picture lives on through those who knew her and tell her story. She will always be my hero 🐻💕 #berentless #forisla #thelongcutie

Instagram

I took Isla for a walk today. I really am so grateful for my @4louis.charity bear and to able to still feel connected with her. Miss you lots Isla 💕🐻

Today I’m wearing Red. It’s National Wear Red Day, which in the UK is for raising awareness of CHD. Long QT Syndrome is tricky in that it isn’t really classed as CHD but for the sakes of today I’m telling you all about it.

I originally just did this as a story - my #onthisday but I love Isla’s smile on it too much and the message behind it.

So grateful to @thryvtrx for this kind donation to @sadsfoundation in Isla’s name ❤️ The speed at which Thryv are working is unprecedented in drug development. No corners or quarters cut, just solid flat out work to create a new effective therapy, the first engineered specifically for Long QT, and all because my little girl was so inspirational. She is still the driving force for the team and I am so proud of her ❤️ She’s going to save/improve the lives of so many people 🥰

I’m so proud of what Team Isla has achieved. She is making such a difference in this world. The energy you see in this picture lives on through those who knew her and tell her story. She will always be my hero 🐻💕 #berentless #forisla #thelongcutie

Blog at WordPress.com.

Follow Following
- The Long Cutie
- Already have a WordPress.com account? Log in now.

%d bloggers like this: