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What is Long QT Syndrome
Cardiac Arrest vs Heart Attack
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Walk The Big One complete! Brilliant experience! Honestly the scariest thing was focusing on not dropping my phone… it was a little windy at the top but the views of Blackpool were incredible! Could see right across to Southport all the way up to the Lake District. Proud of our @we_are_team1c crew ☺️

This is the ecg of 2 year old with #longqt type 1 being treated with salbutamol due to bronchiolitis (top is before, bottom is during the nebuliser). Doctors were unconcerned about prolonging his QT interval as they had done it once and nothing bad happened so they wanted to remove cardiac monitoring - this is not ok! When it is risk vs benefit and giving #qtprolongingdrugs you have to have a risk strategy and minimise that risk. As you can see it is a quicker heart rate (due to the distress of the nebuliser) but the QT is dangerously long. One worrying thing with this case is there was no plan other than the crash cart if he went into cardiac arrest and no one was in fact monitoring the ecg. There were no 12 leads done or printed at any stage. A student asked a nurse what #longqtsyndrome is and the answer was ‘a fast heart rate’. When doctor was questioned about the plan they claimed cardiology told them salbutamol was fine to give and there was no point a nurse monitoring the ecg because they can’t read them. A qualified nurse can read sinus rhythm and spot an ectopic beat or VT. When it comes to arrhythmias, local hospitals must do better! Communication from heart centres needs to improve.

The Long Cutie presents… Finlay!

Finlay has Long QT Type 3 like Isla and as Isla always did, he smiles even on the toughest of days.

I hate that I can only use the same pictures each reel. I have 10s of 1000s of Isla but I wish there were more. Please take pictures of your loved ones and make memories, you never know when you’ll need them.

Today was a @we_are_team1c proud day ❤️ We presented a cheque to @wshospscharity for their playground appeal. For children like Isla, who had regular stays in our local hospital due to common illnesses causing cardiac complications, having access to somewhere safe and sheltered to play as an inpatient would have been a dream. The play area they have designed at Whiston looks amazing and I can’t wait to see it completed. Such an honour to visit today and to be able to support such an important, yet often overlooked, part of hospital life for children.

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