I’m not usually at a loss of how to start writing these. It just usually flows out. However this is the third time I’ve started writing this. I first started when I knew we were going to go down to GOS to trial the change in meds and to meet the Transplant team. I then … Continue reading Make mine a double
Isla’s recovering from yet another surgery. The last possible surgery before they consider giving her a heart transplant. However, it’s not just Isla who needs to recover. Hypothetically, Isla is now as safe as she possibly can be. She’s made some fantastic leaps in her development despite missing nursery because of this bastard virus. Yesterday … Continue reading Fake smiles fraught with danger
It’s a strange time we’re all going through. Everyone is adapting to a new (temporary) way of life, and some people are finding it very tough. Don’t get me wrong, it is tough; little things we took for granted like a quick trip to the shops because you realise you haven’t got a pepper to … Continue reading Isla’s Isolation
February is Heart Month. Doesn’t seem like long since Cardiac Arrest Awareness month in October. I don’t know who decides on these things like what month is for what and what day celebrates what. I would assume February is Heart month because of Valentine’s Day. Valentine’s Day being the 14th possibly because in Middle England … Continue reading Heart Month
Life's big question. Stick or twist? Stick with what you know and what works or change things, potentially for the better. Will the grass be greener, or will it be full of pesticides and eating it will be fatal? I guess this debate hinges on if what you’ve got really works. In Isla’s case... it … Continue reading Stick or Twist?
October was Sudden Cardiac Arrest Awareness Month. It's now November. Now I know everything has a day or a month now and it’s impossible to keep up with what’s what. I purposefully didn’t post during October, because for us, every month is Sudden Cardiac Arrest Awareness month. The threat for us is always there... and … Continue reading Sudden Cardiac Arrest Awareness – it’s not just a month to me
One thing that any professionals involved with Isla’s care ask me is ‘what do you do for yourself?’ I always squirm and try and make something up. I have lots of great friends but we often find that life gets in the way... which is really sad. I chat to so many people on social … Continue reading Self care
Anyone who knows me knows I like my superheroes. I especially like Superman and have a good few things around the house with the Superman ‘S’ on it. My favourite mug is a Superman mug. I have T-shirt’s with Superman on. Isla has Supergirl artwork and I love the Supergirl tv show. Why particularly Superman? … Continue reading Isla-El
‘Hi, it’s the fitter from Hillary’s Blinds. How’s it going?’ ‘Errrr it’s ok, well depends on you’re definition of ok but could be worse.’ ‘Just ringing because I need to come a bit earlier if possible, having one hell of a morning.’ ‘Yep, I know the feeling!’ ‘Whatever your morning has been like, I’ll guarantee … Continue reading A bad day?
It’s been 3 months since Isla’s cardiac arrest. Lots of things and scenarios replay from that day. I still have flashbacks and have times when I struggle but I don’t think there’s much I can do about it. Some days I just feel exhausted and I know it’s purely because of stress... it could also … Continue reading Post Traumatic Stress
The Long Cutie 