Not written for a while but I had an interesting discussion with my psychologist today. It was about luck/chance of bad things happening and where you place the blame and anger. There is around an estimated 0.05% chance of having a genetic mutation of Long QT. That’s 1 in 2000. Now I don’t know 2000 … Continue reading Blame it on the weatherman
Author: thelongcutie
I'm 'retired' as a teacher in 2016 to become a full time carer for my daughter Isla who has Long QT Syndrome (type 3)
The Eriksen Effect
The world watched in horror on Saturday 12th June as Christian Eriksen collapsed on the pitch in the 43rd minute of Denmark’s game with Finland. Eriksen suffered a sudden cardiac arrest. He received immediate medical attention including CPR and 1 shock from a defibrillator. It was harrowing to watch. I cried. I don’t know the … Continue reading The Eriksen Effect
Greenland
I’ve recently watched Greenland. I would recommend it. One thing really hit me though. The little boy talks about the flashes you see before you die. 'Your life flashes in front of your eyes when you die. I think it would be better if it did that while you lived. That way, you could see … Continue reading Greenland
2020: Review of the year
In history books 2020 will always be the year of ‘The Pandemic’. A year so many lost their lives to this horrific virus. A year we applauded our NHS front line workers every night for a few weeks and then apparently forgot them just as quickly. Condolences to anyone who lost loved ones this year. … Continue reading 2020: Review of the year
Empathy and understanding
When I was relatively new to the teaching profession I remember someone saying ‘you can’t be a good teacher unless you’re a parent’. While obviously this isn’t true because you can be an amazing teacher still of course; in some ways non-parent teachers technically have a distinct advantage as they should be full of the … Continue reading Empathy and understanding
Make mine a double
I’m not usually at a loss of how to start writing these. It just usually flows out. However this is the third time I’ve started writing this. I first started when I knew we were going to go down to GOS to trial the change in meds and to meet the Transplant team. I then … Continue reading Make mine a double
Fake smiles fraught with danger
Isla’s recovering from yet another surgery. The last possible surgery before they consider giving her a heart transplant. However, it’s not just Isla who needs to recover. Hypothetically, Isla is now as safe as she possibly can be. She’s made some fantastic leaps in her development despite missing nursery because of this bastard virus. Yesterday … Continue reading Fake smiles fraught with danger
Isla’s Isolation
It’s a strange time we’re all going through. Everyone is adapting to a new (temporary) way of life, and some people are finding it very tough. Don’t get me wrong, it is tough; little things we took for granted like a quick trip to the shops because you realise you haven’t got a pepper to … Continue reading Isla’s Isolation
Heart Month
February is Heart Month. Doesn’t seem like long since Cardiac Arrest Awareness month in October. I don’t know who decides on these things like what month is for what and what day celebrates what. I would assume February is Heart month because of Valentine’s Day. Valentine’s Day being the 14th possibly because in Middle England … Continue reading Heart Month
Stick or Twist?
Life's big question. Stick or twist? Stick with what you know and what works or change things, potentially for the better. Will the grass be greener, or will it be full of pesticides and eating it will be fatal? I guess this debate hinges on if what you’ve got really works. In Isla’s case... it … Continue reading Stick or Twist?
