This is the epic story of Isla's Long Qt treatment. I've split it into 4 parts so not as to bore you all too much! Isla has rare condition called Long QT Syndrome Type 3. Long Qt as a whole affects 1 in 2000 people, possibly more, however this figure may well rise as more … Continue reading Isla’s Treatment: Part 1 →

Docs: "Your daughter has heart failure and I'm sorry she's probably not going to make it." My wife and I: "It's ok." Docs: "It's not ok." That's exactly the conversation we had. Of course it wasn't ok but what else could we say. We'd been scanned twice a week for a month and things were … Continue reading Anxiety Through Pregnancy →

Our ICU experience and what to expect We knew from 26 weeks gestation our daughter wasn’t well, what we didn’t know was how long we’d be away from home or the impact it would have on our lives. Before I start I should say that no two people will have the same experience of ICU … Continue reading ICU Baby (Not Shakin’ That Ass) →