October was Sudden Cardiac Arrest Awareness Month. It's now November. Now I know everything has a day or a month now and it’s impossible to keep up with what’s what. I purposefully didn’t post during October, because for us, every month is Sudden Cardiac Arrest Awareness month. The threat for us is always there... and … Continue reading Sudden Cardiac Arrest Awareness – it’s not just a month to me
One thing that any professionals involved with Isla’s care ask me is ‘what do you do for yourself?’ I always squirm and try and make something up. I have lots of great friends but we often find that life gets in the way... which is really sad. I chat to so many people on social … Continue reading Self care
Anyone who knows me knows I like my superheroes. I especially like Superman and have a good few things around the house with the Superman ‘S’ on it. My favourite mug is a Superman mug. I have T-shirt’s with Superman on. Isla has Supergirl artwork and I love the Supergirl tv show. Why particularly Superman? … Continue reading Isla-El
‘Hi, it’s the fitter from Hillary’s Blinds. How’s it going?’ ‘Errrr it’s ok, well depends on you’re definition of ok but could be worse.’ ‘Just ringing because I need to come a bit earlier if possible, having one hell of a morning.’ ‘Yep, I know the feeling!’ ‘Whatever your morning has been like, I’ll guarantee … Continue reading A bad day?
It’s been 3 months since Isla’s cardiac arrest. Lots of things and scenarios replay from that day. I still have flashbacks and have times when I struggle but I don’t think there’s much I can do about it. Some days I just feel exhausted and I know it’s purely because of stress... it could also … Continue reading Post Traumatic Stress
1 in 10. That’s the survival rate for an out of hospital cardiac arrest. Well figures place it around 8% to be exact. Given the odds Isla’s overcome so far in her little life that doesn’t actually sound too bad. Although we had the defibrillator we weren’t quick enough with it - you can’t shock … Continue reading Isla 2.0
It’s a turbulent, stressful time living in a hospital. It’s even worse when that hospital is on the other side of the country and everyone talks funny (yes you Southern folk - you sound funny, even compared to Scousers!) It’s hard to be completely comfortable when everyone sounds like Danny Dyer. As humans we are … Continue reading I gotta to have faith, faith, faith
If you by some chance haven’t seen, February is heart month. I don’t know if it’s because it has Valentine’s Day in it, (less said about that Hallmark extortionate day the better) but it is. Everything can have at least a day now. Did you all celebrate ‘National Measure Your Feet Day’ on January 23rd? … Continue reading February: Heart Month?
I’ve been a bit rubbish at posting recently so this is just a short one. I have about 3 partially written blogs to get on with but I’m very aware that all my recent posts have been a bit depressing so it's taking time to get the balance right. Kind of like... The ecg from … Continue reading What lies beneath…
These last few weeks have been a very stark reminder (as if I needed one) about how fragile Isla’s life actually is. I think we’d entered a false sense of security because she’d been doing well for so long. The fact she can run around and laugh while inside her heart is doing all kinds … Continue reading Little Star