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The Long Cutie Legacy

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  • What is Long QT Syndrome?
  • Cardiac Arrest vs Heart Attack
  • Contact
  • Long QT
  • No such thing as a simple faint
  • Not the B-D interval?
  • Sunday Facts 1
  • Ion Channels
  • Rarity
  • Types of Long QT
  • What happens to an LQTS heart?
  • Beta Blockers
  • First ‘case’ of Long QT
  • Heart facts 2
  • Changing QT intervals
  • LCSD
  • Valentine’s Day
  • Pacemakers
  • ICDs
  • Discovery of LQTS genes
  • Heart facts 3
  • Long QT Type 1
  • Long QT Type 2
  • Long QT Type 3
  • Variants of Uncertain Significance
  • Rarer Long QT Types
  • Drug Induced Long QT Syndrome
  • Measuring the QT
  • Clinical Diagnosis – Schwartz Score
  • Return to Sport

A bad day?

‘Hi, it’s the fitter from Hillary’s Blinds. How’s it going?’ ‘Errrr it’s ok, well depends on you’re definition of ok but could be worse.’ ‘Just ringing because I need to come a bit earlier if possible, having one hell of a morning.’ ‘Yep, I know the feeling!’ ‘Whatever your morning has been like, I’ll guarantee … Continue reading A bad day? →

thelongcutie Uncategorized Leave a comment Jul 11, 2019 4 Minutes

Post Traumatic Stress

It’s been 3 months since Isla’s cardiac arrest. Lots of things and scenarios replay from that day. I still have flashbacks and have times when I struggle but I don’t think there’s much I can do about it. Some days I just feel exhausted and I know it’s purely because of stress... it could also … Continue reading Post Traumatic Stress →

thelongcutie Uncategorized 2 Comments May 9, 2019 5 Minutes

Isla 2.0

1 in 10. That’s the survival rate for an out of hospital cardiac arrest. Well figures place it around 8% to be exact. Given the odds Isla’s overcome so far in her little life that doesn’t actually sound too bad. Although we had the defibrillator we weren’t quick enough with it - you can’t shock … Continue reading Isla 2.0 →

thelongcutie Uncategorized Leave a comment Mar 23, 2019Mar 24, 2019 4 Minutes

I gotta to have faith, faith, faith

It’s a turbulent, stressful time living in a hospital. It’s even worse when that hospital is on the other side of the country and everyone talks funny (yes you Southern folk - you sound funny, even compared to Scousers!) It’s hard to be completely comfortable when everyone sounds like Danny Dyer. As humans we are … Continue reading I gotta to have faith, faith, faith →

thelongcutie Uncategorized Leave a comment Feb 21, 2019 7 Minutes

February: Heart Month?

If you by some chance haven’t seen, February is heart month. I don’t know if it’s because it has Valentine’s Day in it, (less said about that Hallmark extortionate day the better) but it is. Everything can have at least a day now. Did you all celebrate ‘National Measure Your Feet Day’ on January 23rd? … Continue reading February: Heart Month? →

thelongcutie Uncategorized 1 Comment Feb 5, 2019 5 Minutes

What lies beneath…

I’ve been a bit rubbish at posting recently so this is just a short one. I have about 3 partially written blogs to get on with but I’m very aware that all my recent posts have been a bit depressing so it's taking time to get the balance right. Kind of like... The ecg from … Continue reading What lies beneath… →

thelongcutie Uncategorized Leave a comment Jan 20, 2019 1 Minute

Little Star

These last few weeks have been a very stark reminder (as if I needed one) about how fragile Isla’s life actually is. I think we’d entered a false sense of security because she’d been doing well for so long. The fact she can run around and laugh while inside her heart is doing all kinds … Continue reading Little Star →

thelongcutie Uncategorized Leave a comment Dec 14, 2018Dec 14, 2018 5 Minutes

My Shame

Disclaimer: Isla is fine!!! This is a flashback! So this isn’t exactly what I’d planned to write about or been working on. I was going through my notes on my phone and stumbled upon a poem I wrote exactly 3 years ago today... so I thought I’d share it. Writing it at the time made … Continue reading My Shame →

thelongcutie Uncategorized Leave a comment Nov 12, 2018Nov 12, 2018 2 Minutes

A good dad or a good doctor?

I have recent been chatting with one of our ICU neighbours from Alder Hey who are happily (and nervously) expecting a baby in 2019. Huge congratulations and happy days! Like us they didn’t have the ‘normal’ journey into parenthood. When talking about it, we came across some common feelings... it would be like being a … Continue reading A good dad or a good doctor? →

thelongcutie Uncategorized Leave a comment Oct 25, 2018Oct 25, 2018 6 Minutes

Why Healing Little Hearts?

Many of you will have seen me sharing pictures and stories of some of our Alder Hey stars leading up to the Stars and Stripes Ball to raise money for Healing Little Hearts. We support Healing Little Hearts in recognition of how lucky we are to have the NHS, free healthcare and the expertise of … Continue reading Why Healing Little Hearts? →

thelongcutie Uncategorized Leave a comment Oct 14, 2018Oct 15, 2018 3 Minutes

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